I Love Him

And some day's, I'm completely jealous of what he gets to do/see.

Neuro # 3 - Whatcha Say?

I have to say, Neuro number 3 is the best so far. Although we waited 40 minutes in waiting room number two (aka the exam room), it was worth it for someone who gave us his attention and didn't rush us.

He asked me some questions and got caught up on my current stats. Fatigue. Ringing/Buzzing in Ears. Vertigo. Blurred Vision. Heat Sensitivity. Dazed Vision. The list goes on and on.

We asked a few questions, and I even asked about CCSVI, which he was very familiar with. THANK YOU! I don't care what your view is on it but if you're a part of the MS community, especially if you're an MS Specialist, and you haven't heard of CCSVI, I'd rather not deal with you.

He gave a gracious opinion about the works going on with CCSVI and thought that if it is truly something that could help patients with MS, he would be elated.

I brought up my fatigue, my new found symptom that's probably been around for a while but what I'm just now admitting to. He offered me a drug (can't remember the name, sorry) that comes with two very specific side effects and one benefit.

The Benefit - It's used to fight the flu. So come flu season if I'm still on it, I won't need to get my flu shot. Doesn't really matter to me anyway since I've never had a flu shot in my adult life.

The Side Effects - Brace yourself. Number one: Your legs will turn blue. LMAO! Yes, blue. He even said that it would look like I was wearing blue fishnet stockings. Sexy! Sexy! Number two: I will have a very specific dream. The dream will seem as if someone is looking in my bedroom window.

When he said that, the hubs said, "Nope!". LOL!

(Little info about me. I am very aware of my surroundings and extremely guarded, you can say, when it comes to people knocking on my door, walking behind me, whatever. If you knock on my door and I don't know you, you can assume I'm packin'. LOL! Simple enough, I will not be a victim and MY children will not be victims either. PERIOD.)

So when the doc said that, the hubs said, "I don't want bullet holes in my bedroom windows." LOL! Which would probably happen. I would seriously freak out if I had a dream like that. Eek!

So with those two side effects, the doc said that this pill is the safest on the market. Really? Blue Fishnet-like legs minus the fishnets is safe? Ok. He offered a couple of other solutions too. Like, take a 30-minute nap right after lunch but be sure it's no longer than 30-minutes.

That would be great but...

a) How do I know when I'll fall asleep so I'll know when to set my alarm to wake me up?
b) If Sean is around how will he know when I'm finally asleep so he'll know when to wake me up?
c) How will I fall asleep? Really, how? I'm not a napper unless I'm really just blahhh.... and that's rare.

After talking for 30 or 40 minutes, I did some sort of speed walking test. I was wearing my 'Got Sexy' heels and wasn't making good time so I ditched them and went at it bare footed. Yuk! I hate walking around anywhere other than my home with bare feet but what can ya do.

4 seconds! YES! I'm thinking that's pretty good. :)

Then I got sent down to the lab. Dammit! Did you know I hate needles? Yeah, I see the damn things everyday but, well, technically I don't see them going in so it doesn't count.

I had to give a couple of tubes over to Satan's li'l helpers so they could see if my liver is being affected by the Copaxone and also make sure my white blood cell count is ok. Results to come. If you're on Copaxone, supposably you're supposed to get tested for those two sometime after starting the meds. Neuro number 2 never mentioned it but I'd rather be safe than sorry. Something to mention if you haven't done this and you just started a med. I think it goes for all the Fab-Four crab drugs.

C- Copaxone
R - Rebif
A - Avonex
B - Betaseron

So that's about it. Once I get the prescription for the fatigue stuff (I didn't remind him of it before we left because I wasn't too interested so he forgot to write it out. But his nurse called and said they would mail the prescription just in case.) I'll let you know the name when it comes in, just in case you hate the flu and love blue fishnets.

Oh! I just remembered a couple of things.

1. He said that caffeine may help with my fatigue issues and that our bodies get fatigued when our body temperature rises. He said that our body temperature is at it's lowest at 4am, and at it's highest at 4pm. Makes sense to me, I'm usually on my third or forth burn-out come 4pm.

2. He also said that people with Multiple Sclerosis suffer from an over-active immune system. Contrary to what I wrote in a previous post. I was so bummed when I was told that our immune systems are weakened due to MS but it turns out, according to my doc, they're not. And with Copaxone, it's fighting off about 1/3 of additional crap.

So there ya go!

Until the Update on Neuro #3

PICTURES OF ME GETTING READY AND LAUGHING AT 'BEAN' AND THE HUBS

Got Sexy?

I'm in LOVE with these shoes. They arrived in the mail yesterday, a gift from the Hubs. And maybe a gift for him too. LOL! Just slightly below stripper level. :)

In an effort to beautify my legs, I'm going to wear heels as much as possible. A tip from my Zumba instructor, and it's definitely true. Of course my toes WILL NOT appreciate the effort, but they'll make it through.

This morning I ran to Target and picked up some products that'll make sexy heel wearin' a bit more comfy. In case you need a cozier pump, slingback, wedge, or whatever, try...

- Dr. Scholl's For Her High Heel Insoles

- Dr. Scholl's Heel Liners

- Dr. Scholl's For Her Rub Relief Strips

I paid about $20.00 for all of the above and I felt a great difference. Yay! Haven't used the Rub Relief Strips yet.

Heels make me feel powerful! And 6+ feet tall!

Off topic - Tomorrow is my Neuro appt. It's the first appointment I've had with a Neuro where I haven't been nervous. I guess it's because he's not going to tell me anything I don't already know.

And maybe I'll wear my new shoes.

Fuming

I received this invitation in the mail over the weekend. It's from Shared Solutions, the people behind Copaxone.

When I opened it, I saw the name of my former neurologist and I about screamed. I am extrememly frustrated that this incompetent, money stealing woman who claims to care about her patients is the "Featured Speaker" at this meeting. WHAT?!?!

I posted a few of the encounters I had with her last year while trying to get a diagnosis. You can read here and here and there's probably more.

I don't know what to think of it. To me, it seems like a joke. When I first saw it, I thought, "Great! Finally something to go to that's talking specifically about my situation and possibly updating us on upcoming treatments."

I'm unsure about what to do. Just ignore it, and let other people believe she's this excellent doctor in the field of neurology. Because she's not. Do I call Shared Solutions and see why they thought she was the best doctor in the area to deliver this speech?

I see myself sitting at this meeting (which seems to be very informal since it's taking place in a Bistro) and just getting so angry as I listen to her. I have a vision of me standing up, throwing my arm into the air with my finger pointing straight at her and saying, FRAUD!

LMAO!

Oh goodness. What to do? What to do? I would say that I would bring the hubby along for support but I think he may be more unhappy with her than I am.

So I'm not sure. I may just go for the last two words printed on the invitation, Dinner Served, and see what the slacker has to say. And then maybe I'll tell her that the seizures she said I had, weren't really seizures at all. And the brain MRI that was no worry of her's and was probably fine, had three lesions on it. And had she actually given me longer than 12.2 seconds to explain my symptoms and test my neurological response, she may've discovered quite a few more things pointing to Multiple Sclerosis.

(INSERT VERY BIG CUSS WORD HERE)

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Valentine's Day on a Budget

Before and After

Snickers are his favorite. Even though he say's he doesn't like chocolate. LOL!

There's a message inside each bottle leading him to the next one. When he found the last bottle, there was a little gift waiting.

I used the Reeses as paper weights for the Mission statement. :) Then we ate them.