Showing posts with label VEP. Show all posts
Showing posts with label VEP. Show all posts

Friday, October 30, 2009

Why I Wore Lipstick...

...To My MS Diagnosis.


It's official. Sarah Ellis - Mom, Military Wife, Business Owner, and MS'er.

No surprise here however the fam didn't take it as well. I had already commited to the fact that I had MS, as was clearly shown in one of my past posts. The Hubs has been wonderful and even wrote a little something that I would like to share with you.

"It's been a long process, but today we got confirmation that Sarah has Multiple Sclerosis. So I'm writing this for her, for me, for them and for you. But most importantly for Us. Because, in the end, it is the 'Us' and the 'We' who makes this journey through the ups and downs of life easier on 'you' and 'I'. Today marks a turning point in our lives but not a stopping point nor a resting point. In fact, it is Sarah's quiet strength, determination and courage (not to mention stubborness) in the face of a debilitating disease that has given me the ability to cope with the possibilities of the future. So, today We decide to persevere and not give in...We decided to rejoice in life and not focus on the suffering...We decide to laugh and smile more than we will cry...We decide to support each other when we are the weakest. But most importantly, We will continue to be Us."

So now you know why I love this man. :) I think he pretty much said it all.

I'm handling everything pretty well. I'm telling myself I'm fine but this headache that I've had for 3 days now is telling me I'm stressing. It'll go away soon, I know. No tears. Those were shed months ago, ok maybe weeks ago, when all of this was really hitting me.

Results of my Spinal MRI, EEG and VEP:

My Spinal MRI showed one more lesion. So three in my noggin and one on my spine. My EEG came back normal so my ex-neuro was wrong when she diagnosed seizures. My VEP results weren't back yet but he said the results wouldn't make a difference either way.

The diagnosis was delivered and now it's time to get down to business. As I told a fellow MS'er, "I think I'm waiting for the words to come out of the neuros mouth and then something inside of me will say "GO!" and I'll be on my way to healthy living." I'm sticking to that but first, I've got some reading to do...


These are 4 binders, each containing information about a different drug said to slow the progression of MS (I have RRMS by the way). When the Doc said he was going to give us "information packets" on each, I think Sean and I were just expecting a pamphlet. Nope! We both said, "Holy Shit!" (ok, maybe it was just me) when we saw the nurse walk up with these monsters.

At first I was not willing to consider a drug, but after conversing with my neuro and reading up on my options I think I'm going to go for it. I'm not looking forward to injecting myself everyday and yesterday I thought, "I am 27. 27! 27! TWENTY SEVEN! And now my refrigerater is constantly going to be stocked with a months worth of mommy's drugs. Ah well, what can ya do?

So the plan is set! Diet. Exercise. Drugs.

Oh My!

Wednesday, October 21, 2009

EEG and VEP


Getting ready to start my EEG.

Fake sleeping during EEG. I had to completely relax and keep my eyes closed for 20 minutes.




The aftermath.

So all my tests are done, now I just wait. I wasn't able to get my Radiologist Report today. You have to mail/fax/email a request, they then have 14 days to respond. I'll send the request tomorrow but I'm sure I'll see my Neuro before they get here.

My appointment to go over all tests results is next Thursday, the 29th. Between now and then, I'm just going to chill. These may be my last 8 days of being 'free' of an incurable disease.

Once I get the results, either way they go, I'll share with you after all family members have been told.

Thank you for your support. :)